Measuring The Progress of Our Village

Nov. 10, 2018

It's important to measure progress. I wrote this more than three years ago as a blogger for the International Bipolar Foundation. My feelings are still the same but, thankfully, our village is ever-growing.


May 27, 2015

Parenting isn’t easy. Anyone who’s ever parented, or has even just been parented well knows that. Don’t they say, “It takes a village to raise a child”? As if to say raising children well takes more than just one person, it takes a community, right?

Let’s suppose, God forbid, that your child has been diagnosed with a very serious illness, such as diabetes or, dare I say it, cancer. My assumption is that the outpouring of support would be ample from the very start. From what I can tell, serious childhood illnesses like these are publicized and supported locally and nationally in many ways. There are 5K races, online campaigns, viral videos, fundraisers, and celebrity spokespersons offering their support to encourage donations and community involvement. And, of course, in our local communities, neighbors and friends seem to be willing and able to offer random daily kindnesses. They are bringing over lasagna, mowing the lawn, or caring for your other children when you take your sick child to the hospital. Yes, the entire village certainly seems to step in and help. And thank God, too. Because caring for a sick child is not only heart-wrenching, it is exhausting. Caring for a sick child can break you.

But now, let’s suppose, that your child has been diagnosed with a mental illness. What does the community do for you? How do they reach out and help?

(Crickets, the sound of crickets)

Childhood Cancers and other similar illnesses are tragic diagnoses, life-changing, and sometimes terminal. Parenting a child with such an illness requires on-going support. Parents need to be thoroughly informed, comforted and encouraged to stay strong through the challenges ahead.

But, have we forgotten, Childhood and Teen Mental Illnesses are tragic as well? Life-changing...and yes, sometimes even terminal. Parenting a child with such an illness requires on-going support. Parents need to be thoroughly informed, comforted and encouraged to stay strong through the challenges ahead.

Parenting isn’t easy. But when you are parenting a child with mental illness, the walls cave in. I know this first hand. And there are no neighbors offering lasagna at your doorstep. Because it is likely, you haven’t told anyone. Because who would you tell? What would people think? What would they say? And what could they possibly do to help? So, often times, it’s just you. And your child. With perhaps their siblings, frightened and alone.

I met a mother this week, a mother of a son who has schizoaffective disorder. Her son is exactly my son’s age. We traded stories and some tears over coffee. The onset of my son’s bipolar diagnosis paralleled her son’s situation in many ways, only her son’s illness is relatively new, while my son’s illness has been a part of our lives for five years now.

As I relayed our family’s story to her, the tension in her neck, the quiver in her voice, the furrow in her brows all seemed to lessen a bit. She kept saying, “How do you do it? How have you been so strong? I am not sure I can do this…”

But, clearly, she can do this. Because she took a step I didn’t take when I should have. She reached out for help. When my son first presented with his illness five years ago, my walls all caved in. I didn’t tell anyone. And there was definitely no lasagna, no one to share stories, coffee and tears with. But now, thankfully, the stigma of mental illness is finally breaking down a bit. This other mother and I met through a local mental health organization that put us in touch when she contacted them for help. I became involved with the organization about a year after my son’s spiral into serious illness, after he’d begun self-medicating out of denial and after he made life-altering decisions that ultimately led to his incarceration. She, however, became involved at the onset of her son’s diagnosis. So her son, thankfully, is now getting help...and so is she.

This is progress.

Our communities need to acknowledge that parenting children with serious conditions, whether they are illnesses of the pancreas, the blood, or the mind, need help.

We need a village of support to do this right. I hope to be part of that village, if only for this one mother. Because nobody should have to do this alone.

Original post titled as "Be the Village" on http://www.ibpf.org/blog/be-village

The Benefits of Re-Routing: Finding Hope When There Are No U-turns

June 3, 2018

A few weeks ago, I traveled out of state for work. After a full day of school presentations, I was tired and ready to get back home. Three hours away, on an unfamiliar highway in the mountains where cell service is spotty, my phone navigation lagged in a dead spot for just a moment and I missed my exit. 

Worst yet, there was no place to turn around. I had to drive 20 miles the wrong way before I could finally head back in the direction of home.

But on that road traveling the wrong way cursing emphatically, I was reminded that in life, we rarely get to turn around. Sometimes we have to go the wrong way for a long time before we get a chance to get back on the right road.

I haven't always known this. As a kid, I loved "do-overs". Whether it was a roll of dice, a hand of cards, or a final shot at the free throw line, if I didn't like the outcome the first time, as the big sister, I often declared the need to do it again. And my younger brother, always eager to please, would agree. I'd always get another chance: another roll, another hand, another shot at the basket.

In middle school, our family got our first computer. My brother and I were supposed to take turns - one complete game per person and then switch. The problem was, I rarely finished a whole game so he didn't get many chances to play. I would constantly find a reason to start over. Looking back now, my brother's patience was saint-like. I ought to give him a call and apologize.

As I grew older, my desire for a do-over when things didn't go my way continued. While rehearsing for piano recitals, I'd start over every time I flubbed a note. Eventually, I would get through the piece error-free, but the beginning of the song was always better than the rest of it.

I've done this a lot over the years, looking for the do-over so I can get a better outcome. Lots of staccato-moments, lots of beginnings, lots of starting, stumbling and seeking to start again. Parenting, though, doesn't offer do-overs. There's no time you can turn around and try again. You just have to keep going and hope there's another way to get where you're headed, hope for re-routing.

There have been plenty of times I would have loved to call "do over" when I'd flubbed as a mom. The little mistakes like when I let my son eat too much Easter candy before church and he vomited all over the crowded pews of parishioners. And the big mistakes, like the times, I promised I wouldn't tell anyone about my son's crisis, letting stigma keep him from getting help.

Knowing what I know now - that the impact of stigma can be devastating and that the lack of information and support can lead to the lack of hope - I would definitely do things differently. But, sadly, there are no U-turns in parenting. 

The good news is when our life roads get re-routed, we have new opportunities. My re-routing has allowed me to meet some other wayward travelers.

Recently, I gave a presentation and I included parts of our family's story. One of the participants followed me out to my car afterward and asked if I had a few minutes to talk. 

"Thank you for coming today and telling your story," he said, and his eyes cast down before adding, "I feel like you came here just for me." 

For privacy, I won't share the specifics about his loved one in crisis, but he said it was the first time he'd told anyone about it. He appeared visibly shaken, yet also somewhat relieved.

When I share my family's story in presentations or at meetings, people often seek me out later, privately, either that day or days, weeks, even months later to tell me their own story, relieved and grateful knowing there are others who've been through this too. Sometimes I say to them, "we're members of a club we never knew we joined -but we are in it together." 

These encounters are powerful. No matter how many times someone says, "Thank you for telling your story - I feel so much better because of ..." something washes over me. Their relief and their gratitude fill me up, temporarily quelling the guilt I still feel about my own son and what happened years ago. Often, they conclude by saying something like this, "Just know that you helped someone today."

This isn't about my story, though. And you don't have to have a blog or change careers to make a positive impact on someone else. Each of us traveling, whether by broken GPS or not, has the power to help other lost travelers simply by sharing our story. It's not complicated and it doesn't require special training. It might be hard at first but it's worth it. By sharing our stories with other solo travelers, our own roads become less lonely.

I've met amazing people and learned so much on this re-routed journey so far. My road has even intersected with my older son's. Sometimes, I have the chance to travel with him briefly sharing a leg of our journeys together before our roads diverge again.

But I'll keep going this way - allowing the GPS to reroute me, trusting that the highway I'm traveling is the right one for me. And hopefully, at some point up ahead, at an intersection I can't yet see, my road will merge with my son's again and we can travel the rest of it together.